100% of all donations will go directly to them once a month, 100% is after Pay Pal Fees Postage and any other cost that might be associated with doing the donations. Finacial record will be available at any request and I am tryoing to think and come up with a program or something to where the top 5 donors for each month gets something, wheather it is a $25.00 gift card at a selection of choices, if anyone else as an idea please let me know, so we can implement this for a great cause, I know my husband is in the bottom 2% of the worst cases ever reported and or treated, so it does hit close to home. Thank you for your support.
Info on The Restless Legs Syndrome Foundation
What is RLS?
Restless legs syndrome (RLS) is a neurological condition that is characterized by the irresistible urge to move the legs. In order for you to be officially diagnosed with RLS, you must meet the criteria described in the four bullets below:
You have a strong urge to move your legs which you may not be able to resist. The need to move is often accompanied by uncomfortable sensations. Some words used to describe these sensations include: creeping, itching, pulling, creepy-crawly, tugging, or gnawing.
Your RLS symptoms start or become worse when you are resting. The longer you are resting, the greater the chance the symptoms will occur and the more severe they are likely to be.
Your RLS symptoms get better when you move your legs. The relief can be complete or only partial but generally starts very soon after starting an activity. Relief persists as long as the motor activity continues.
Your RLS symptoms are worse in the evening especially when you are lying down. Activities that bother you at night do not bother you during the day.
RLS can also cause difficulty in falling or staying asleep which can be one of the chief complaints of the syndrome. A substantial number of people who have RLS also have periodic limb movements of sleep (PLMS). These are jerks that occur every 20 to 30 seconds on and off throughout the night. This can cause partial awakenings that disrupt sleep. Sleep deprivation can seriously impact your work, relationships, and health.
Seventeen-year-old Ali Dzienkowski loves to play the piano. Six years ago, she could barely sit still.
"It's kind of like sitting on your foot for a while and then it falls asleep," she said. Ali was diagnosed with restless legs syndrome. "It occurs when the child wants to sit quietly, sit and do homework, or go to sleep," said Dr. Daniel Picchietti. Recent research shows 2 percent of children in the U.S. have the condition, making it more common than epilepsy or diabetes. Still, RLS can be tough to diagnose, as Ali's mom Karla can attest. "We saw numerous doctors. It was one of the hardest things I've ever went through," she said. Related Conten: Restless Legs Syndrome
That's because many doctors are not familiar with the condition in children. And a key symptom, intense leg pain, is often dismissed as growing pains.
""In addition, most children with restless legs have jerking in sleep. As a result of this impact on sleep, the children become irritable and have difficulty in school," said Dr. Picchietti.
Side effects that are often mistaken for ADHD or hyperactivity. While the exact cause of RLS is unknown, Dr. Picchietti believes genetics does play a role."There's now been a gene isolated that accounts for about 50 percent of RLS cases. In children, it very often runs in families," he said.That's why finding a specialist is key. While there is no known cure, there are treatments."Avoiding caffeine, keeping a regular sleep schedule," said Dr. Picchietti.In more severe cases, like Ali's, iron supplements and medication are also used. Exercise helps, too.Ali and Karla want other families to know they're not alone. "There is hope, there's treatment, and let's find a cure together," said Karla.
